|(31) Booker Hooker Baker
Mon, 11 July 2011 18:31:39 +0000
My mom was busy all weekend at the Arts Festival. I wish I’d known you need a snuggler. Kevin, you’re the best!
PS–Thanks for teaching me how to type, too.
|(32) Terry Black
Mon, 11 July 2011 18:32:21 +0000
I am so glad your Mom sent me this site, I have been thinking about you and wondering how things were going. Although I am sad you are not yet feeling your best, I am so glad you are being taken care of by the BEST at Primary. I feel very confident that you will come out of this with the strength of an elephant. I know this, because you and your entire family are fighters and with the love and prayers being sent your way “we” can do this together.
I too look forward to see your name on the PC Soccer Team, I know the team will be too. You are an incredible young man with a lot to do for our world. Hang in there and I hope to see and hear from you soon.
XOXO Mrs. Black
|(33) stan soper
Mon, 11 July 2011 18:33:06 +0000
We haven’t met you but we met your parents at a neighborhood party last year. Gwen (my wife) and I live on Daybreaker Dr. Our daughter Natalie is 15 and you may have seen her on the school bus or somewhere else. We go to church with the Pattersons and others you may know.
We are all praying for you and your parents to have guidance and for you to be healed if this is possible.
If there is anything else that we as your neighbors and friends can do, please let us know.
Your Neighbor Stan
|(34) Bill Steagall
Mon, 11 July 2011 18:33:32 +0000
Kevin and Vicki, Our thoughts a prayers are still with you in the hopes that the course you choose will work out for the best, and that Kevin will fully recover and once again enjoy his life and activities.
|(35) Kathy Gulbrandsen
Mon, 11 July 2011 18:34:21 +0000
Vicki – Jeff – and of course – Kevin –
We have been so out of touch because of our house building and move – which we are in the middle of right now. We were so sad when we heard that Kevin is still so sick. Tanner has finally turned a corner with the help of some treatments and prednisone (short term miracle drug for Chrone’s). Please know that we have heavy hearts at this time, and we will most definitely keep you in our prayers. If there is EVER anything we could do – you know we would in a moment. We really do love all of you and hope that there is a miracle around the corner.
We will hopefully talk in the near future. Tanner sends his best to his friend Kevin.
Love, Kathy Gulbrandsen and family
North Salt Lake, UT
|(36) Linda Hilton
Mon, 11 July 2011 18:34:57 +0000
I was so sorry to hear that you are not feeling well, it is no fun when you are not feeling your best. I loved looking at all of your photos! My favorite is the the one with you on the soccer field! I look forward to seeing new pictures of you on the high school team in the fall!
I am disconcerted to say that I was not aware that you were not well, but as I read about your illness I was so impressed with your strength, optimism and positive attitude. You are such a determined and tenacious young man, I am sure now that the solution is in sight, you will be on the mend soon.
You are in my thoughts and prayers, I am hoping for the best of everything for you!
|(37) Katie Whiting
Mon, 11 July 2011 18:38:11 +0000
I really wish you were back to your normal self. I am really sorry that you are still not feeling well. we should go wave at redstone sometime soon. Get to feeling well.
|(38) Laurel Laumann
Mon, 11 July 2011 18:38:42 +0000
|(39) Hey Kevin, I've been thinking about you today wit
Mon, 11 July 2011 18:39:15 +0000
Hi Pal, Papa and I prayed and prayed that Dr. Downey would be a good listener and a wise man, and it looks like our prayers were answered. We had a wonderful friend named Ralph Downey (his wife played the organ at your parent’s wedding), so we knew the Downey name would be an auspicious sign. Keep up that powerful determination of yours, Kev.
Phil, we hear you and Dad had a super time in Seattle. Katie, thanks for being there for Kev and your mom while Phil and your Dad were gone. What a trooper you are! We love you all, Grammie & Papa
|(40) Janet Greenwell
Mon, 11 July 2011 18:39:51 +0000
Kevin (Jeff & Vicki, Phil & Katie)
I am a terrible neighbor…I feel so bad! I totally thought you had long recovered from all of your health issues, but hopefully that will be clearly in sight. I love this website and have read everything posted to know what is going on with you. I even googled SMA Syndrome to understand the sickness and what the surgical options are. The Greenwell family will definitely have you in their thoughts and prayers going forward. You are such a brave young man. While it is scary, painful and difficult at times, sometimes these experiences help to make us even stronger than we were before. Go Park City Soccer!!!
Well Kevin, we also know about doctors not knowing what is wrong. I believe about the same time you were sick last fall, Jim was having severe pain and had gone to see the doctor. He went through all kinds of test for about three months trying to figure out what was wrong with him. Sometime in December, they discovered that he has a paralyzed right diaphragm, which is the muscle that inflates and deflates your right lung, thus leaving you with only one functioning lung. The diaphragm gets paralyzed because the phrenic nerve which controls the diaphragm gets damaged. However, the usual causes of this did not occur and they have no idea what may have happened, but it happened after he had the initial pain he went in for. He has now been referred up to the University of Utah to the research doctors and his doctor there is totally interested in following his case because in 25 years of practicing, he has only come across 3 unknown causes, with the 2nd case being his 7 month old, now probably a year old grandaughter diagnosed with the same thing. It is really weird Kevin, as you well know, trying to figure these things out.
Hang in there…things will work out! Sometimes it takes great patience to accomplish great things and you are so on your way!
Whiting family…if there is anything you need to call on us for to help you out, we are a phone call away, a hop, skip and a jump down the street.
The Greenwell’s (Jim, Janet, Robert, Jordan & Colbi)